Officially three weeks today was my first day on "gilenya." The only thing I can say about it is I am still taking it! I still have the ups and downs with the ms, but I can rest assured I am doing all that I can to slow the progression in my body. Too bad that is the only thing to report about it. It has not been a huge boost of energy, or a repair of damage, but it may be coming....later. If I can keep from getting any infections (remember to get my flu shot) I think I can handle this.
This morning was cooler than any so far and I could already tell the signs by my numbness. The cold will be worse on my feet, legs and hands than the heat. Unbelievable that it is so nice outside, but my feet and fingers are frozen. That's a good description! I know I still have toes on my feet, feet on my legs, fingers on my hands & so on, but to me they feel frozen. To the touch they aren't cold. Weird huh? Trust me it feels weird, too. I'm sure if I could figure it out, the 400,000 people who have ms wouldn't.
No comments:
Post a Comment