If anyone has ever been to high school homecoming parade, you know how much fun it can be. Today I went to ours. A lot of football, cheering, bands marching and the king and queen. So happy to be able to enjoy a great day with all the kids.
I haven't had any new problems with the gilenya. I did see my neurologist and we talked a lot about the side effects. I was glad to hear one of the side effects they have been hearing a lot about is fatigue. Of the 90 patients Ruan Neurology has taken the gilenya, at least half are having an increase in fatigue. I'm most thankful it is the gilenya making me more tired and not the ms. The one symptom most ms patients have and the single most complaint is fatigue. It has been described as a normal person (without ms) at their most tired point of the day and multiply that times 100. A short nap of even 20-30 minutes can revive some energy. But at times even 10 hrs of sleep we can still be exhausted. The heat and humidity play a huge roll in my fatigue. That is coming to an end soon!
My neurologist lectured me about swallowing a little bit of pride and try using a walking device more often (aka-cane). And I know it would be easier to use it than falling and breaking something else, but it is sure annoying to depend on to walk. If I just knew when the legs weren't going to work would be so nice.
Today, I am so grateful to be able to walk (without the cane) and enjoy my day.
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