Friday, September 9, 2011

Finally it is 2:53 am!  I am begging for it to be 5:00 am, as lie there and watch the clock. Got to bed about 10, thought I would sleep great.  Who couldn't sleep as nice as it is. Windows opened, quiet and 55 degrees. Sounds like a dream? It is wonderful until I roll over and I have only been asleep 2 hrs.  It's like taking a nap. Seems like I have slept for hours, until I look at the clock, again. Then again.  Might as well get up and blog about the past couple of  (notsogreathadbetter) days.
You remember a week or so ago, I fell, hit my arm, got an injection? Well, now I know why I shouldn't have any steroids while taking gilenya.  Because that's the rules.  Even only being on the gilenya three weeks has been long enough to lower my immunity. I don't fare well with steroids anyway, so the one little injection was a good lesson learned for me. Reasons not to take steroids:
  • I get thrush, (white patches) in my mouth, tongue, throat. That hurt, so I rinse & swallow, YUK!
  • I have a slow heart rate, after steroids it has been in 30s.
  • I get a chemical taste in my mouth.
  • I have erosion's in my stomach and intestines, from so many steroids. Very painful trying to keep to my southern living/cooking diet!
  • I have "roid rage" and no one in my family likes me.
I am hoping the aftermath of the injection is about over.  I'm sure it could be worse, I just don't want to experience worse right now.  The gilenya is so easy. I feel lucky I don't have to wake up and think about giving myself an injection. For now I will keep taking the pill & rinsing.

Also, being the 10th anniversary of the twin towers, I feel pretty lucky to live in America.  Let's remember the friends and families of everyone affected by the 9/11 tragedy.

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