Well, after exhausting all other ms disease modifying drugs, my neurologist recommended gilenya. It required jumping through a lot of hoops, finally my insurance approved it. Maybe it is the miracle drug for ms, if it has anything to do with cost & a cure...this is it! It is very expensive. One would hope this is the one we have all been waiting years to get. First and foremost, it is a pill, not another injection.
The first day, (a six hour dr appointment) was the beginning of gilenya. A group of us, checked in at the dr, got vitals done saw the dr and took the first pill. We were provided food and drinks from Novartis, and then at the end of six hours I was on my new journey.
Day one-heart rate dropped to 48. Slight headache, shortness of breath. At the end of the day, I had a change of attitude, what could be worse, a few side effects that will hopefully go away or an injection everyday?
Day two & three-heart rate pounded and shortness of breath, hip pain, maybe within 30 days the side effects will go away.
I will post more as time goes on.
Hi,
ReplyDeleteHealthline just launched a video campaign for MS called "You've Got This" where individuals living with MS can record a short video to give hope and inspiration those recently diagnosed with MS.
You can visit the homepage and check out videos from the campaign here: http://www.healthline.com/health/multiple-sclerosis/youve-got-this
We will be donating $10 for every submitted campaign to the National MS Society, so the more exposure the campaign gets the more the videos we'll receive and the more Healthline can donate to MS research, support groups, treatment programs, and more.
We would appreciate if you could help spread the word about this by sharing the You've Got This with friends and followers or include the campaign as a resource on your page: http://louisianagirlms.blogspot.com/2011/08/my-journey.html
Please let me know if this is possible and if you have any questions. And, if you know anyone that would be interested in submitting a video, please encourage them to do so.
Best,
Maggie Danhakl • Assistant Marketing Manager
p: 415-281-3124 f: 415-281-3199
Healthline • The Power of Intelligent Health
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