Today being Sunday, first I think of is going to church, then an afternoon nap. Being up two to three times in one night sure calls for that nap, but it doesn't always happen. One thing about having ms is a very irregular sleep pattern. Some days I can sleep 12 to 18 hrs. then other days I sleep 4 to 5 hrs. I know it sounds crazy and doesn't matter how tired I am that's just the way it is. So usually by noon it's nap time.
Most days I only plan one thing. A trip to the grocery story or going to church will wipe out all my energy. Like the grandchildren say sometimes it's time to take a rest!
Well, today being day six for gilenya, I have to believe the worst is over. I didn't even notice a change in heart rate today, even though the pill has had the same feelings as having an ms exacerbation. I am thinking the gilenya will be a good thing after the first few weeks.
Ms is not the worst thing that could happen, I know it could always be something much worse.
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